Day One Hundred & Fifty-One, May 30th, 2024

Hi-ho and hello.

Like a deepest ocean.

In a position where I’m to stay still, to sit sedentary for the next couple hours left of the Infusion and I’m bored lonely, and wanting to crash.

‘CLEAN’

It’s my infusion day. I’d share more visuals but given the environment and privacy of others, that’s all you’re going to get, sorry.

How about that sign though, right? Hahaha.

So, let me tell you a story. Originally, I was completely against the idea of Ocrevus. I was more than apprehensive to doing the Ocrevus and asked my neurologist ‘is this worth it? Is it going to kill me? Am I going to be okay?’. He said ‘well you’re progressing and you just keep progressing so I don’t think you have any other choice than to take the gamble‘. I was patient with that information, I talked to my wife, my brother, even John. I thought of prospects, I thought of JCV, my life in the future but at the same time, I was also feeling a bit of pressure. Regardless though, I did take the gamble and I just finished up my second infusion.

I say this because, the first infusion parts one and two of that first run was a bit rough but only a brief bit. I did deal with some fatigue the first day or two after getting the infusions but that was it. I whooped and hollered, jeered, and yahoood the idea of this medication. That was for about a week or two, where I popped out a bunch of art and I was able to do a bunch of school work without a hiccup. Everything was great and then that shifted and everything got a lot worse and stayed getting harder.

And today everything hurts after the infusion was done, after getting home my body felt and still feels like it has ice and cinder blocks stuck in my joints, wrapped around my bones, and I am tired but it’s 1:50 am on the 31st and I can’t sleep and f***.


ENJOI!!!

C’est La Vie

Good night and good morning, good morning and good night. May the day be bliss, may it be joyous, and gentle. Thank you for your support.

NOSCE TE IPSUM